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RE: Cancer Support Thread - 7/28/2010 10:38:28 PM
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Ellie-Mae
Posts: 1452
Joined: 4/9/2005
From: The EMPIRE state!
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quote:
So...if I'm understanding what you're saying I think that's what you mean? You know you should for your good but you just don't want to deal with it. Right?
Sort of... maybe. I am still trying to figure it out. Maybe part of me "just doesn't want to deal with it" so I am trying to pretend it isn't there.
Before I had cancer, I was only taking a pill for my cholesterol. That was hard enough since I don't like needing to taking meds. Now I have to take meds to replace my now non-existent thyroid and another med because, since having cancer, my body isn't dealing very well with stress, and more meds to keep me from clenching my jaw and to relax my neck muscles at night.
Oh, and I hear you about the scheduling Dr appointments and such. I will have to be tested once a year for a few years to be sure the cancer is really gone still. This last year it meant that I had to go on a two week no iodine diet (which is awful). Then another week on the diet while I go to get shots (I have a phobia about shots) to make me hypothyroid, get blood tests, take a low radiation pill, and then a body scan. The hospital is an hour away so it takes up a lot of time. I thought it was just going to be routine, but was shocked to find out that I still had cancer and needed another operation to take out whatever was still left of my thyroid and then a double dose of radiation, and then be kept in isolation, and then be isolated at home...
I know that thyroid cancer is an easy cancer to get rid of. It is a good cancer to have if you are going to have cancer. I have had relatives that have gone through chemo, and body altering surgery, and I have had relatives that have died after long painful battles with cancer. I feel that I have had it easy. I am glad that I have not had to worry about whether or not II will live to see my children grow up.
BUT I think about going through the testing again, and I just don't want to do it again. I don't want to torture myself with that diet, I don't want to disrupt my life, my husbands work and my children's lives. I don't want to hear about another bout with cancer, and I don't want to take these stupid pills.
I don't know why I am feeling this way now. I am usually really laid back and find it easy to go with the flow of life. But lately I just want to stamp my foot and be done with it. I have a life to live!
I haven't had a chance to read the rest of this thread yet. I hope that I am not bringing it down. This is the first that I have really put how I have been feeling lately into words.
_____________________________
Believe very little of others opinions of you, and believe less of your opinions of yourself. The only opinion that matters is that of your Creator, and He thinks you're to die for.
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RE: Cancer Support Thread - 7/30/2010 11:59:44 PM
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mutinywxgirl
Posts: 4412
Joined: 4/29/2005
From: St. Petersburg, FL
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Friday, July 30, 2010 8:14 PM, EDT
Okay, we have arrangement info for you all. Well, for those who are able to attend, that is.
Deegan's funeral will be at 4 pm on Sunday, August 1st. There will be calling hours from 2 pm to 4 pm before the funeral. A reception will follow the funeral. If you feel led to make and bring something to the reception, please feel free.
The funeral and calling hours will be held at First Baptist Church of Central Square, NY. It's the the fairly large white building just past the fire department. The church has limited parking, but across the street is Traub's Funeral Home, who are handling arrangements and have kindly opened their parking lot to us. And, sort of behind the church and across the street is a bank, where we are also able to park. There is on-street parking as well, on both Main Street (which runs north and south) and Fulton Ave. (which is the one behind the church and runs east-west).
We are asking folks to do a couple of things.
First, please feel free to bring cut flowers from your gardens! Deegan loved to pick flowers and give them to me, even if it was only a dandelion. So, to honor that, please feel free to bring your own (or go ask that neighbor with the lovely gardens for some!) flowers in a vase to decorate the sanctuary. Deegan will love it.
Also, since he LOVED his temporary tatoos, we're going to have a bunch at the doors- please don a tatoo in support of this fun loving, sweet spirited little guy whose heart will live on with ALL of those who met him.
We are at peace (for the most part) knowing that he's in heaven and we will one day see him again.
And, for those of you who will not be able to attend the funeral, or who may not feel comfortable doing so, we plan on having a Celebration of Life party soon, perhaps in a couple of weeks, where we will remember Deegan. Details to follow as we work that out. We may have one Party down where our parents are from, and one up here where we live. Feel free to let us know your thoughts on that. Big hugs, and thanks for your support through ALL of this craziness. -Joy
_____________________________
When blood and water hit the ground.
Walls we couldn't move came crashing down.
We were free and made alive.
The day true love died. The day true love died.
Lisa is happy THE ROWDIES ARE BACK!
14 (go Tony!)
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RE: Cancer Support Thread - 7/31/2010 9:45:15 AM
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wfisaac
Posts: 299
Joined: 3/18/2007
From: Tip of the Mitt
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Thanks for sharing that, Lisa. I have shed so many tears since hearing of this little guy going Home. I never met him in person but he still made an impact on my life. And his mom's strength through all of this has been an inspiration.
I will continue to pray for them. Especially later when all the activities are done and the people don't come around as much to give their support. That will be when another step of grief will come in. I pray God will continue to give that whole family strength through the whole process of grieving. I am thankful they have the comfort of knowing Deegan is now with Jesus and free of any more pain and suffering.
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Veronica
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RE: Cancer Support Thread - 7/31/2010 10:18:50 AM
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IwillseekHim
Posts: 835
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I feel exactly the way you do, Veronica. My heartfelt prayers, sympathy and support will remain with Deegan's parents and loved ones for a long time. And, I pray for you, too, mutiny. I know that your heart is hurting too. We hurt when our friends hurt. You will grieve for Deegan also. Please let us know if we can do something for you.
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RE: Cancer Support Thread - 7/31/2010 11:35:50 AM
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mutinywxgirl
Posts: 4412
Joined: 4/29/2005
From: St. Petersburg, FL
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Thank you Veronica and Melissa. I will. I've yet to talk with Joy - I know she's going nuts with everything. She is being surprisingly strong, and I'm SO thankful for that.....yet she knows I'm a phone call away after people are gone and she needs to break down. That's when I need to be strong for her. I was the first person she called when she got the initial diagnosis of cancer, and thankfully, I had her laughing by the end of it. I do wish I could go up there, but we've always had this amazing connection even without being around one another. She knows I have countless people praying for the family.
As for me, this mourning just goes into my current mourning of a relationship that truly must die for me, and I'm having a hard time giving it up. So, as I cry for it, I also cry for Deegan. Please pray that I am able to properly mourn them both. That's my biggest need.
_____________________________
When blood and water hit the ground.
Walls we couldn't move came crashing down.
We were free and made alive.
The day true love died. The day true love died.
Lisa is happy THE ROWDIES ARE BACK!
14 (go Tony!)
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RE: Cancer Support Thread - 8/2/2010 9:05:06 PM
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mutinywxgirl
Posts: 4412
Joined: 4/29/2005
From: St. Petersburg, FL
Status: offline
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Joy wants to thank everyone for praying for them, and continuing to pray for them. She said her husband gave a beautiful eulogy that was very evangelical in nature. They know Deegan is with Jesus. She sounds remarkably good...I do think it is finally a relief that he's no longer in pain and they can now begin their new lives once again...while honoring his life.
_____________________________
When blood and water hit the ground.
Walls we couldn't move came crashing down.
We were free and made alive.
The day true love died. The day true love died.
Lisa is happy THE ROWDIES ARE BACK!
14 (go Tony!)
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RE: Cancer Support Thread - 8/5/2010 10:36:20 PM
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Ellie-Mae
Posts: 1452
Joined: 4/9/2005
From: The EMPIRE state!
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Are you sure that we can never donate blood? Does this mean that I can't donate my organs when I die either??
_____________________________
Believe very little of others opinions of you, and believe less of your opinions of yourself. The only opinion that matters is that of your Creator, and He thinks you're to die for.
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RE: Cancer Support Thread - 8/5/2010 10:58:15 PM
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wfisaac
Posts: 299
Joined: 3/18/2007
From: Tip of the Mitt
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You know, Elli-Mae, that's a good question. I've been curious about it as well. I've heard that but I'm going to ask my oncologist when I go see him next week. I'll let you know what I find out.
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Veronica
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RE: Cancer Support Thread - 8/5/2010 11:24:43 PM
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LibererlaFemme
Posts: 1307
Joined: 4/11/2005
From: PA, USA
Status: offline
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I was told that at the blood bank. But you're right, Veronica, it should be confirmed by a doctor. In any case, if there's even a tiny chance there could be some cancer cells in the blood, I can understand the caution. But it's a bummer.
_____________________________
><> Pam
From the rising of the sun til the sun goes down, let the name of the Lord be praised!
< < my sweet Toby {1997-2010}
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RE: Cancer Support Thread - 8/14/2010 9:31:32 AM
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wfisaac
Posts: 299
Joined: 3/18/2007
From: Tip of the Mitt
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Okay...I did ask two different sources this week and the answer is no, you can not donate blood any time after you have had cancer. I do agree it's a good precaution in case there is any cancer in the blood. But, my thing with that is I would think it would be safer for some one like me who 5 years down the road and still no sign of cancer returning to give blood than someone who might have cancer but not know it. There are many cancers people don't even know they have until it's quite advanced. Oh well....the way I look at it now is I may not be able to donate blood anymore to the Red Cross but now my blood has a different mission. To be able to help cancer research.
And by the way....I had a visit with my oncologist yesterday and the ct scan was clear. And my blood work showed the cancer marker went down again (now at 18). And no more chemo! I will still be a part of the clinical trial but I will be a part of the observation arm only. It feels great to finally be on the other side of this. I know it will still be a long road to getting totally back on my feet but at least I can stay heading in that direction without getting hit with the chemo again.
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Veronica
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RE: Cancer Support Thread - 8/15/2010 1:47:52 AM
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Karaboo2
Posts: 460
Joined: 2/4/2008
From: Ontario, Canada
Status: offline
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And even with not being able to donate, if you are still looking to help, blood donor clinics are always looking for volunteers to help with check-in, provide refreshments, etc. My anaemia became 10x worse when I was battling cancer, so even if they let cancer survivors donate, I would still be exempt because of that.
I, too, am on the long road to get 100% back on my feet, but I know it's attainable if I just give it time.
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Kara
<-- my highschool prom dress, which is now TOO BIG!!!
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RE: Cancer Support Thread - 8/15/2010 8:48:43 AM
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mutinywxgirl
Posts: 4412
Joined: 4/29/2005
From: St. Petersburg, FL
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So happy to hear it Veronica!
Please continue to pray for Joy. She and Kyle are having a LOT of issues now that they are home and attempting to transition back into "normal" life without their son.
_____________________________
When blood and water hit the ground.
Walls we couldn't move came crashing down.
We were free and made alive.
The day true love died. The day true love died.
Lisa is happy THE ROWDIES ARE BACK!
14 (go Tony!)
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RE: Cancer Support Thread - 8/15/2010 11:31:45 AM
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wfisaac
Posts: 299
Joined: 3/18/2007
From: Tip of the Mitt
Status: offline
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You're right, Karaboo, that there are other ways to volunteer. There's always something that can be done.
I would probably be like you as well as far as the anemia is concerned. That is something I've always had a problem with and now especially since going through chemo. On the recent blood results I got it was still way too low. The only thing that did manage to get back in the normal range was my white blood count, which I am very thankful for.
I pray your journey back goes well. How long has it been since you finished treatment? My last treatment was July 6.
Yes, I have been remembering Deegan's family. In fact, I've been thinking of them a lot. You hear of how when people are in car or plane crashes and they are one of few survivors that they deal with some emotional issues from that. I can't claim to say this is exactly like that but my guess is it's very similar. That day I was coming home with the good news of no more signs of cancer and no more chemo my emotions were very mixed. I was happy and relieved but my heart ached for those who I've known through all of this that didn't make it. I will continue to lift them up and I pray they will grow stronger each day. I know they will go through a lot of pain but I pray that in time the pain will be replaced by the many wonderful and joyful memories they have of Deegan. I also pray for strength in their marriage as I know something like this can really put a marriage to the test.
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Veronica
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RE: Cancer Support Thread - 11/25/2010 3:32:35 PM
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mutinywxgirl
Posts: 4412
Joined: 4/29/2005
From: St. Petersburg, FL
Status: offline
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Just wanted to ask prayers for Joy's family for today....their first holiday without Deegan. She and Kyle are struggling greatly, though she is working very hard on keeping the word divorce out of her vocabulary. Neither one have been dealing with the grief process very well. I talk with her pretty regularly and I'm one of her "vent" people. I told her I would continue to ask for prayers for them. She has her good days and bad.
Also just found out that another friend of mine was recently diagnosed with breast cancer, but it seems to have been caught early - and her treatment sounds much like what Pam went through with hers.
Will keep you posted.
_____________________________
When blood and water hit the ground.
Walls we couldn't move came crashing down.
We were free and made alive.
The day true love died. The day true love died.
Lisa is happy THE ROWDIES ARE BACK!
14 (go Tony!)
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RE: Cancer Support Thread - 11/25/2010 9:00:10 PM
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wfisaac
Posts: 299
Joined: 3/18/2007
From: Tip of the Mitt
Status: offline
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I will be lifting Deegan's family. I'm sure it's going to be tough going through the holiday and I pray God would give them the strength they need.
Also praying for your friend who was recently diagnosed. One of my closest friends is going through the same thing. It sounds promising at the moment that they were able to remove it all and we're just waiting on the results to know what the game plan is. It looks like she'll be doing just radiation and no chemo. The results of this last procedure will determine that.
Hey Pink, I will be praying for this man battling lung cancer. As far as what are good choices for meals it's kind of hard to say. I had two aunts both have breast cancer within a year of each other and both had different chemo drugs. One felt sick all the time and had a hard time eating and the other had a hearty appetite the whole time. Kind of the same with me. But the one thing that did seem the same with each one of us is no matter what chemo drugs you get it can really do crazy things to your taste buds. So, even if we did still have an appetite it was hard to find things that tasted good. One thing I think we were all mutual on was that things with a tomato base really tasted funky. The things I seemed to crave a lot were watermelon, musk melon and ice. Not sure why the ice but it was like I could not get enough of it. And I have heard of others who have gone through chemo say the same.
Sorry...I guess I'm not much help with ideas on meals. I remember my oncologist telling me this is not the time to try and diet....eat what sounds good....even if all you want is mac-n-cheese. Some things that I normally liked, I couldn't stand while doing chemo.....and some things I'm finding I still haven't gotten a taste back for.
As far as ideas on other ways you can help.... the one thing that at least for me really helped me is people dropping me notes or stopping in to check on me after a treatment. Several days after chemo were pure misery for me and even though I wasn't up to chatting because of the pain I liked having someone there with me. I guess it's just the reminder that I wasn't alone because it's a very lonely thing to go through.
I feel like I'm doing a lot of rambling but not really saying anything helpful. I will think some more on it and if something comes to mind I will share it.
I do have to say that it really blessed me to see you asking how you can help. To me that shows that your friendship is going to be a huge blessing to them through this.
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Veronica
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RE: Cancer Support Thread - 12/6/2010 2:43:28 PM
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IwillseekHim
Posts: 835
Joined: 5/17/2009
Status: offline
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I've been gone awhile but have often thought of Deegan's family. Will continue to keep them in my prayers.
Also been wondering how Veronica is doing???
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RE: Cancer Support Thread - 12/6/2010 5:48:58 PM
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mutinywxgirl
Posts: 4412
Joined: 4/29/2005
From: St. Petersburg, FL
Status: offline
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My friend has her surgery tomorrow for breast cancer. Please keep her in prayer.
_____________________________
When blood and water hit the ground.
Walls we couldn't move came crashing down.
We were free and made alive.
The day true love died. The day true love died.
Lisa is happy THE ROWDIES ARE BACK!
14 (go Tony!)
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RE: Cancer Support Thread - 7/2/2011 10:29:44 AM
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mutinywxgirl
Posts: 4412
Joined: 4/29/2005
From: St. Petersburg, FL
Status: offline
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Just wanted to ask prayer for Joy, as the anniversary of Deegan's death is coming up at the end of this month. She and Kyle have made it through this year; it's been rough, but God has sustained them. Thank you all who have prayed for them throughout the ordeal and beyond. She was so very touched.
_____________________________
When blood and water hit the ground.
Walls we couldn't move came crashing down.
We were free and made alive.
The day true love died. The day true love died.
Lisa is happy THE ROWDIES ARE BACK!
14 (go Tony!)
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RE: Cancer Support Thread - 7/28/2011 11:00:20 AM
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mutinywxgirl
Posts: 4412
Joined: 4/29/2005
From: St. Petersburg, FL
Status: offline
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Today is one year ago that Deegan when to be with Jesus. I spoke to Joy last week, and she said she and Kyle are doing a memorial service today, with some of the family who can be there. She sounded okay, but we both have agreed that July is a bad month for us. I can say it it only through God's grace that she and Kyle are still together. I had some serious doubts for a while. And though they still are struggling, they are definitely better than this time last year.
Thank you all for your prayers. I did post this in the CW friends page too.
_____________________________
When blood and water hit the ground.
Walls we couldn't move came crashing down.
We were free and made alive.
The day true love died. The day true love died.
Lisa is happy THE ROWDIES ARE BACK!
14 (go Tony!)
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Earlier today I felt fine emotionally and then when I got home I cried quite a bit for almost an hour. 
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