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RE: Anybody out there with fibromyalgia? - 4/27/2010 11:07:59 AM
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cherish405
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From: The Land Down Under
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Before I was diagnosed with fibromyalgia, I'm sure John thought that I was just being lazy. Things like walking to the sink to put my dishes there after meals was something I found painful. He made some comment one day about how I don't even walk over to the sink to put my dirty dishes over. Now he knows though because he sees first hand what I'm like. And I've taken him in with me when I see the rheumatologist so that he can ask questions, and also hear what she has to say about things. He's heard the expert, and she's explaining what's going on with me.
Maybe with your family, that might be what it takes. Getting a medical professional to explain what's going on in your body. Maybe not your current doctor. Would be good if you had another one.
Other than that, if people choose not to believe me, then that's their problem. I guess in your situation, it's not that simple though, Roberta. 
I've had a really bad fibro day today. Really bad flare. Today would have been my mother's 76th birthday if she were alive. I don't handle anniversaries well. The fibro has been so bad that I've just about been screaming!
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 4/27/2010 11:34:36 AM
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cherish405
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From: The Land Down Under
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(((((((((((((((ROBERTA))))))))))))))))))))))
I can understand how that would go. I honestly don't know how people can work full time and have families etc when they have fibromyalgia. I have friends with young children, and I don't know how they do what they do. I would imagine the same of somebody who works full time. I just know that I wouldn't be able to do it.
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 4/28/2010 2:49:58 PM
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IwillseekHim
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I admire anyone who can work fulltime and have fibro. I can only work part time and that is more than enough for me.
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RE: Anybody out there with fibromyalgia? - 5/1/2010 10:48:26 PM
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cherish405
Posts: 8570
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From: The Land Down Under
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It must be so hard on people who are carers too. Parents, or somebody looking after loved ones.
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 5/16/2010 11:28:28 AM
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cherish405
Posts: 8570
Joined: 4/11/2005
From: The Land Down Under
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It's been a while since anybody's posted in here, so I thought I'd bring it back up to the top.
How are you all doing?
I've been having quite a few flares lately. There's been a lot of stress for me.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 6/9/2010 10:32:12 AM
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cherish405
Posts: 8570
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From: The Land Down Under
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Anybody out there?
I'm having a real problem with my fibro. Not nice pain. On top of that, my body is tingling. Not a good kind either. Don't know if that's fibro or not.
To make things worse, I've relapsed with the infections I had before. I asked my doctor last week for another round of antibiotics. He sent me for tests, but I don't see him for another 6 weeks. It's really hard to get an appointment with him. Another doctor at another practice gave me the antibiotics, but told me to g back to my usual doctor the following week if I was no better. I did, but now can't see him.
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 6/10/2010 9:13:21 AM
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cherish405
Posts: 8570
Joined: 4/11/2005
From: The Land Down Under
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Roberta, let me know when your appointment is. You can email/pm if you prefer.
Hey, I know what it's like when people tell you that you don't look like you're in pain. It's like people think you're lying when you're not. Not everybody is like that. I believe you. Hang in there, dear friend. Hopefully you'll be getting some help really soon.
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 6/13/2010 11:08:08 PM
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Adrenalinejunkie
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From: Tennessee -- America at it's best
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Hey y'all! I have a question. Yesterday I noticed that when I put my hand under really cold water that on my fingertips it felt kinda warm and got colder as it got further up my hand and on several different occasions I'll be washing my hands in scalding hot water and on the top of my hands it feels freezing cold. I know that a symptom of Fibromyalgia is hypersensitivity to cold, but that seems a bit extreme. Does this happen to anyone else?
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RE: Anybody out there with fibromyalgia? - 6/14/2010 9:09:17 AM
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cherish405
Posts: 8570
Joined: 4/11/2005
From: The Land Down Under
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I've experienced it where my fingertips are kind of warm when my hands are under cold water. I've never experienced it where the tops of my hands feel freezing cold when I'm washing my hands in scalding hot water though.
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 6/16/2010 7:26:38 AM
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cherish405
Posts: 8570
Joined: 4/11/2005
From: The Land Down Under
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It's different for every person. I've heard that it's incurable, unless God intervenes. One of the guys on the worship team at my church though has managed to overcome it somehow. So can't say how long we'll have it.
The fingertips thing doesn't happen all the time. It is strange though.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 7/13/2010 9:50:38 AM
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cherish405
Posts: 8570
Joined: 4/11/2005
From: The Land Down Under
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Hi everybody. How are you all doing?
It's a really cold winter for us right now. My body isn't liking the cold.
Was supposed to go to a pain management course last Thursday and yesterday. I've had a really bad dose of the flu, so didn't end up going. I'll go to a later one.
_____________________________
Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 7/15/2010 10:10:18 AM
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cherish405
Posts: 8570
Joined: 4/11/2005
From: The Land Down Under
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Roberta, maybe you're overdoing it. Exercise is supposed to be one of the things to help fibro. My rheumatologist told me to find out how much my body can exercise WITHOUT hurting myself. Even if it's walking to the mailbox 3 times in a day, for example. Don't know what distance or amount you could do. When I found how much my body can tolerate, do that. Then gradually increase the amount so that it doesn't come as a big shock to your body. You may be overdoing it with McGee right now in terms of walking him. Once you see your specialist, they can probaby give you better ideas of what you can do. Maybe some natural things to help with pain.
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Outside of a dog, a book is a man's best friend;
inside of a dog, it's too dark too read
~ Groucho Marx ~
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RE: Anybody out there with fibromyalgia? - 7/15/2010 9:26:51 PM
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BugLady
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I think that is one the most difficult aspects of the condition, pink. The perception of laziness by other people...
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RE: Anybody out there with fibromyalgia? - 7/17/2010 12:24:31 AM
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BugLady
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I have a question for anyone who doesn't mind answering.
Has anyone ever said to you something to the effect, "If you just did {fill in the blank} you wouldn't notice your pain."?
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Mart. She is in so much pain from fibro. She had to quit a few days ago. They were constantly trying to make her do things that she couldn't do.
Essentially, you are being told you should be able to control something out of your control. Your pain. People tend to equate their pain experience with what you must be feeling. So they assume you can just buck up. The pain from fibromyalgia is a whole different breed of pain, though.